The Association for Paediatric Palliative Medicine (APPM)
The APPM represents doctors working in paediatric palliative care across all care settings in the UK. The APPM therefore represents both paediatricians with an interest in paediatric medicine and other doctors particularly GPs with a specialist interest, many of whom are working in children's hospices.

Batten Disease Family Association
A charity offering a wide range of support resources and facilitating awareness and research to help families, carers and professionals caring for a child/young adult with Batten disease in communities across the UK.

Child Bereavement Charity
The Child Bereavement Charity is the UK's leading charity that supports families and educates professionals both when a child dies and when a child is bereaved. Every year the charity trains around 5000 professionals across health care, social care, education, the emergency services and the voluntary sector. It also provides a national support and information service, award-winning resources, an interactive website with online forums, and Buckinghamshire-based family bereavement support.

Childhood Bereavement Network
A multi-professional, national federation of organisations who work in various settings with bereaved children and young people, their families and other caregivers.

Children's Heart Federation
The central point for all UK children's heart support groups.

Children's Hospice International
Non-profit organisation promoting hospice support through paediatric care facilities and providing education, training and technical assistance to those who care for children with life-threatening conditions and their families.

Children's Liver Disease Foundation
A charity providing research, education and emotional support to families and young people with liver disease.

CLIMB (Metabolic Disease Support Group)
A charity offering information, advice and support to adults, carers family members, professionals and parents on over 550 metabolic diseases.

Contact A Family
A charity providing advice, information and support for families with disabled children.

Council for Disabled Children
Provides a national forum for the discussion and development of a wide range of policy and practice issues relating to service provision and support for disabled children and young people and those with special educational needs.

Cystic Fibrosis Trust
A charity offering support and advice to families.

Duchenne Muscular Dystrophy Family Support Group
A charity offering support and advice to families.

EQUIP
An NHS website which signposts members of the public to useful health and social care websites that have been quality-checked and has a directory of over 4200 support groups and services both national and local to the West Midlands and checked regularly.

Every Disabled Child Matters
The campaign to get rights and justice for every disabled child.

Give them a Break
Based in Devon, Give them a Break work with charities to provide free holiday accommodation to those who really deserve a break away from their home surroundings.

Help the Hospices
National charity supporting hospice care throughout the UK.

International Children's Palliative Care Network ICPCN
A collaborative partnership between the Association for Children with Life Threatening or Terminal Conditions and their families (ACT), Help the Hospices and Children's Hospices UK. Contains an international directory of children's palliative care and hospice services.

Jennifer Trust for Spinal Muscular Atrophy
A charity offering support, information and contact with other families.

Make-A-Wish Foundation® UK
Make-A-Wish as a very simple objective - to grant magical wishes to children and young people fighting life-threatening illnesses.

MuchLoved
Muchloved hosts memorial websites on behalf of 12,000 families.

Muscular Dystrophy Campaign
A national charity offering support and advice through family care officers based in neuromuscular centres throughout the UK.

National Council for Palliative Care
The umbrella organisation for all those who are involved in providing, commissioning and using palliative care and hospice services in England, Wales & Northern Ireland.

National Institute for Health and Clinical Excellence (NICE)
NICE is an independent organisation responsible for providing national guidance on promoting good health and preventing and treating ill health.

Niemann-Pick Disease
A charity supporting families of children with all forms of Niemann-Pick Disease.

Rett Syndrome Association UK
A charity offering telephone support seven days a week. Has diagnostic, therapy and management clinics for all families.

Sibs UK
For people who grow up with a brother or sister with a disability or chronic illness.

Society for Mucopolysaccharide Diseases
A charity offering a needs led service in the areas of special educational needs, home adaptations, welfare benefits, palliative care and short breaks.

The Social Policy Research Unit
Research in key areas of social policy (including health and social care), social security and employment.

Winston's Wish
A charity helping bereaved children and young people rebuild their lives after a family death.