There are an estimated 23,500 children and young people
in the UK who will die before they reach adulthood.
Some of them will die when very young; others deteriorate slowly
over many years. Families caring for these children and young
people - often 24 hours a day, seven days a week - can feel under
enormous emotional, physical and financial strain. Relationships
can suffer; careers may have to be abandoned; well brothers and
sisters can feel left out; and everyday family activities become
almost impossible.
Children's hospice services offer a lifeline to these children,
young people and their families, helping ordinary people in
extraordinary circumstances to cope with the challenges of daily
life. They provide a range of flexible, practical and free support
at home and in the hospice to the entire family, often over many
years and at any stage of the child's illness. This includes short
breaks and daytime activities enabling families to get a rest; help
with the control of pain or other distressing symptoms; and support
for family members, including brothers and sisters.
When the time comes for the child to die, children's hospice
services are there to provide end-of-life care and bereavement
support for as long as it's needed, helping families and friends
approach death with dignity and peace.
All children's hospice services are charities, relying
overwhelmingly on public generosity to continue to provide their
services to families that need their vital support.