Our care projects

We help children's palliative care professionals to deliver the best possible care to thousands of children, young people and their families each year.

Our priorities are to (1) define and share best practice to enable the highest standard of children's palliative care and (2) support the development of sustainable children's palliative care services to ensure they meet the needs of children, young people and their families.

Our work to support children's hospice care teams in the UK includes the following:

1. Commissioning and undertaking research to:

  • help to build the evidence base for children's hospice care across the UK. Visit our research section
  • determine what is needed to enable life-limited young people across the UK to experience a smooth and positive transition from child to adult palliative care services. Read about our work with the Transition Partnership

2. Producing guidance and organising training for children's hospice services to address:

  • support for children requiring short or long term ventilation
  • the storage and administeration of medicines
  • practices associated with the use of cool rooms in children's hospices
  • how children, young people and their families are inolved in service development and delivery
  • cultural barriers to children's hospice services created by language
  • the safeguarding of children and young people in children's hospices
  • how life-limited children, young people and their families are supported to access essential non-medical services required to help manage their condition
  • the development of volunteers in children's hospices
  • the development of an effective care workforce.

Read more about the work we do with with other organisations including the Transition Partnership.